NDIS Road to Readiness

NDIS Road to Readiness Map

MSAC Vic is recruiting!

Applications are sought from people interested in joining the Victorian MS Advisory Council (MSAC). MSAC is a community advisory board made up of people with MS and carers / family members of people with MS.  The council aims to represent the needs and views of the MS community and reports to the board of MS ACT/NSW/Vic. Applications are sought..

 

2014 Annual Conference Click here for Playback of the 4 sessions

Recognition from the Minister for Community Services

personal thanks to Anthony and PwMSV mary wooldridge

Dear Readers

MS research in Australia is making a major contribution to our knowledge of MS, just a couple of research findings from Australia in the past 12 months were that adverse levels of ‘bad’ fats in the blood are linked to the level of disability and the rate of disability progression in people with MS suggesting that simple lifestyle modifications, such as diet and exercise, may slow the rate of disability progression in MS because these changes will help to reduce the levels of ‘bad’ fats that are circulating in the body. And that there could be a significant association between meditation, lower risk of depression, and improved quality of life in people with MS suggesting that meditation practices may be of benefit in improving quality of life for people with MS. 

Farewell Stella Young; at the end of last year we farewelled Stella Young; a very great loss to the Australian disabled community; she contributed so much to building a sense of community among disabled people. Stella was genuinely funny but her humour was not intended to make others comfortable it was sharp and biting and cutting -- and funny….Her humour and her disability were part of her armoury; Stella referred to herself as a crip because it horrified people and made her feel strong but she contributed much to the argument for better opportunities for people with disabilities. True to her words Stella didn't inspire us by living an ordinary life while using a wheelchair, she lived a life of exceptional achievement. Here are three quotes from Stella speaking about the quality of life for disabled people:

  • Half of all people with disabilities [in Australia] live near or below the poverty line. Less than 40 per cent of us participate in the workforce ... In fact, Australia ranks last among the OECD countries when measured on quality of life for people with disabilitie;. 
  • The National Disability Insurance Scheme is an investment in all Australians. It's not about people like me who currently live with disabilities, it's about all of those who might in the future; and
  • I want to live in a world where we don't have such low expectations of disabled people that we are congratulated for getting out of bed and remembering our own names in the morning. I want to live in a world where we value genuine achievement for disabled people.

Memorable passwords:  Do you have difficulty remembering passwords if so here is a way to make yourself secure but easy-to-remember passwords. String together two or more unrelated words which you can remember, eg a pet and your football team, now add symbols, capitals and numbers, like this:- 1Hawthorn?tabitha2 you can even make it application specific by adding a couple more letters eg FB for Facebook:-  FB1Hawthorn?tabitha2

PWMS Conference 2015:   The research I referred to at the start of my report comes from just two of very many exciting projects made possible by support from MS Research Australia. Matthew Miles the CEO of MS Research in Australia will be speaking at our annual conference this year to be held on Saturday May 2nd at the MS Nerve Centre.  Go to page 1 for more details.

This year’s conference will be very popular  so make sure  you get your booking in early

 

Nigel Caswell

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